The words of our 17 year old TEEN Leader - "It is my DUTY to Advocate for Vitiligo" - Priyanka Francis, CA
Did you Know...
(See our News page for full details...)
https://www.vitfriends.org/news-updates
On March 8, 2021 FDA held the first ever Vitiligo Community HEARING...
https://www.fda.gov/media/155068/download
On July 18, 2022 The United State Food and Drug Administration (FDA) APPROVED a treatment for Vitiligo.
VITFriends will be featured in an upcoming documentary film called "More Than Our Skin" created by Hull Bay Productions
MORE THAN OUR SKIN is a film designed to
incorporate four key elements in telling this
important story. Here are the sections below:
The film, More Than Our Skin will be a
documentary exploring in depth the effects of
living with Vitiligo through the stories of those
who live it.
Through the personal and often painful stories
of eight women (and/or men), More Than Our
Skin will dig into a deeper understanding of
what it means to live with Vitiligo:
Stories of falling into deep depression
Stories of contemplating suicide
Stories of isolation and addiction
Stories of death
We want the individuals telling their stories to change the narrative of what people think of Vitiligo. We want to eliminate the stigmas by allowing the viewing audience to meet the people who will share their stories of pain and promise.
To learn more about this film click here!
incorporate four key elements in telling this
important story. Here are the sections below:
The film, More Than Our Skin will be a
documentary exploring in depth the effects of
living with Vitiligo through the stories of those
who live it.
Through the personal and often painful stories
of eight women (and/or men), More Than Our
Skin will dig into a deeper understanding of
what it means to live with Vitiligo:
Stories of falling into deep depression
Stories of contemplating suicide
Stories of isolation and addiction
Stories of death
We want the individuals telling their stories to change the narrative of what people think of Vitiligo. We want to eliminate the stigmas by allowing the viewing audience to meet the people who will share their stories of pain and promise.
Remembering 2019:
Our 2019 National Vitiligo Community Conference and World Vitiligo Celebration was a major success, with over 320 in attendance.
THANKS to the hard work of Dianne Tribbit and the Houston Vitiligo Awareness Movement Team. CONGRATULATIONS!
What is Vitiligo - and - Who is VITFriends?
by
Katrina Christian
our
N.C. Co-Leader
What is Vitiligo - and - Who is VITFriends?
by
Katrina Christian
our
N.C. Co-Leader
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Our organization is a SILVER GuideStar
Exchange participant, demonstrating its commitment to transparency.
https://www.guidestar.org/search
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Our organization is Listed: https://www.charitynavigator.org/
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Info about World Vitiligo Day:
"World Vitiligo Day is a day to create extensive awareness
on vitiligo and a day dedicated to all living with vitiligo globally"
Says: Ogo Maduewesi,
a Nigerian Vitiligo patient,
Founder and Executive Director of the
Vitiligo Support and Awareness Foundation (VITSAF)
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As we look at the future of Vitiligo,
What is it that we ASK of our Politicians?
- For Vitiligo to
be classified as a disease?
- For treatment or
medications specific to Vitiligo?
- For Vitiligo to
be COVERED by Insurance?
- For Government
funding for Research?
- For Funding for
Support Group and awareness efforts?
The revival of The National Vitiligo Act.
https://www.congress.gov/bill/94th-congress/house-bill/5264
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VITFriends is a PROUD Member of:
NIH Coalition
https://www.niams.nih.gov/about/partnerships/niams-coalition/coalition-members#volunteer
Global Vitiligo Foundation
https://www.globalvitiligofoundation.org/global-vitiligo-support-community
Vitiligo Research Foundation
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YOUR support - Any Support
WILL make a difference!
Shop on at AMAZON-smile, and THEY will
give to VITFriends
https://smile.amazon.com/ch/80-0618761
Quick video on how to use Amazon Smile
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Our HISTORIC - 1st World Vitiligo Day Rally
June 25, 2016
on the
US Capitol Steps, Washington, D.C.
/https://wvdusa.org/2016-wvd-usa-washington-d-c/
This event that was a major success!
QUOTE:
"Look how far we've come"
- Alicia Roufs, MN Leader -
We REMEMBER: WEZE RADIO Boston, MA Click for announcement
WHAT is VITILIGO
Vitiligo is REAL! Living with Vitiligo, Eczema, Discoid Lupus, Atopic Dermatitis, Psoriasis, or any other form of skin condition can be for most patients, a physical, mental and emotional challenge; but it IS possible.
https://www.vitfriends.org/what-is-vitiligo
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QUICK News Highlights.....
Vitiligo is becoming increasingly prevalent.
What are your concerns?
Our concerns are:
* that you would consider helping VITFRIENDS with this work of educating others.
* that you would help us as we support and encourage individuals with Vitiligo.
* that you would attend our annual conference and also share it with others.
* that you would distribute our brochures, flyers and postcards to individual you encounter with Vitiligo.
* that you would volunteer to assist at our educational seminars and conference which are held every year
* that you would pray for this organization.
* that you would GIVE to this non-profit organization.
Please email us your questions: support@vitfriends.org